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Make the Holidays Successful for Kids on the Autism Spectrum

It’s beginning to look a lot like that time of year when your list of things stressing you out is as long as your shopping list.

Keeping the magic alive during the holidays for families living on the spectrum may mean taking extra time to look at the season through your child’s eyes. Maybe your notions of holidays past belong in the past because those traditions no longer work.

For families dealing with autism, the key to a successful holiday season may lie in your ability to adapt to what works now, even if it’s unlike the holidays of your youth.

1. Talk to your family about what to expect.

Not everyone knows what it’s like to face the holidays when you have kids on the spectrum. When Holly Bird’s grandson was a toddler, her extended family just kept saying her grandson was in his “terrible twos” when he would act out. Her grandson wasn’t diagnosed with autism until he was four. But it was clear from his early days that he would not experience the holidays like the rest of the family, she says.

“It took us a while to get the rest of the family to understand,” says Bird, a retired health counselor in Arizona who writes a blog about her family’s adventures. Her family advised her to utilize disciplinary tactics like “time out” to get her grandson to listen, Bird shares.

It took some communication to get everyone on the same page about how to make holidays successful for the entire family.

“The biggest thing we try to do for the holidays is to make sure the family knows that when we’re together as a family, it isn’t all about the child with autism” and the whole family responding to the child’s behavior, she says. “It’s all of us being calm and …  him just being able to do what he regularly does” in his normal routine.

Bird communicates with family members who are coming in from out of town with a phone call, email, or text message to let them know how they can adjust for her grandson’s special needs.

Katie Koole-McCurdy, a Michigan mom who has two boys on the autism spectrum, started writing about life on the spectrum while preparing for a family reunion several years ago. She experienced the same feeling about needing to communicate what was happening.

Her oldest was three at the time and had sensory issues and needs beyond what her family had experienced.

“I was like: I’m going to go to this family reunion. I’m going to get all these questions, or they’re going to judge that my kid is acting very differently than what is typical,” Koole-McCurdy says. “I have no shame in this. I’d rather just explain to everyone what’s going on.”

Seven years later, she still runs The Maseman, “the musings of two normal parents to two normal boys. Because normal is relative.”

2. Change your own expectations.

Successfully handling holidays can start with changing your own expectations of what the holidays should be, Koole-McCurdy says.

“Sometimes, you have to say no to things, and it’s hard,” she says. Sometimes, when she knows they’re invited to a house with 30 people where her boys are going to be expected not to touch anything, it might not go well. So, she might opt out.

“I can’t expect my kids to do things that they’re not able to do,” she says.

Bird knows the struggle.

“It is hard,” Bird says, “because people’s expectations of the holidays have been pounded into our heads for so many years.” Families coping with autism can’t do things the way things have always been done, she says. And that’s OK.

3. Choose the traditions you want to keep.

Expectations also include knowing what’s important to you as a parent, Koole-McCurdy says. She wanted her children to be able to enjoy some of the same family traditions she enjoyed as a child. She had to take time to process and figure out which traditions would work for her kids.

Before kids, she thought she couldn’t wait to try the Elf on the Shelf® tradition of setting a magical elf around the house. After having two boys with autism, she realized that was something they wouldn’t understand.

But she discovered her 10-year-old loves helping to put up the Christmas tree.

“So, we make that time a really special time,” she says. “It’s not something for me that I really cared about as a kid. It wasn’t a big tradition. But my one son really likes that.”

4. Don’t force-feed holiday foods.

Sometimes, Bird’s family orders pizza for the kids’ table to remove some of the stress that comes with family dinners. Her grandson is partial to simple foods, so they don’t make a big deal about it.

“If he eats chicken nuggets for dinner, he’s going to have chicken nuggets for dinner on Thanksgiving night,” she says. “We’re not going to force him to eat something because Aunt Sally brought it and it’s everybody’s favorite dessert and he has to try it. He’s not going to try it. It’s no different than a regular day. He just knows there’s more people around, there’s more noise, and there’s more aggravation.”

5. Have a settle-down spot.

Bird noticed that in her grandson’s school, kids with autism gravitated toward beanbag chairs that were set up in spaces made to help kids calm themselves.

“We’ve started doing that at home,” Bird says, “where there’s an area where if my grandson or one of the other kids feels that they’re angry, they can go sit there and think about it. There’s no tablets, no nothing. They can just sit there and then come talk to me about it. As parents and grandparents, if we could listen more with our eyes and pay attention to what the children are trying to say to us, it would be easier for all of us.”

6. Keep something tangible on-hand for your child.

For Koole-McCurdy, a go-to item such as a push-pop sensory fidget toy for her younger son is a good distraction. For her older son, who’s less verbal, she brings an iPad.

Before she was a mom, she might have thought letting a child use an iPad at a party would be rude. She’s let that mindset go.

“I have to understand where my son is at,” she says. “He doesn’t have back-and-forth communication skills. For him to go to a setting with a lot of people, he’s not going to converse. It would be so unrealistic for me to have an expectation that you have to sit here and act a certain way when you don’t have the skills to be able to do that.”

7. Be mindful of noises.

 Sometimes even the sound of unwrapping gifts can be annoying for a child with autism.

 Bird recommends games such as seeing who can unwrap presents the quietest. She also tries to help her grandson understand that loud noises usually do not last a long time. And she knows when it’s time to get the headphones out and let her grandson block the noises.

 “If it’s in the middle of dinner, give them their headphones,” she says. “Make it a great day for everybody. Don’t worry about what your family is thinking. Worry about when everybody leaves, and you walk out that door from the holiday, that you guys have had a great day.”

8. Don’t forget to count your blessings.

So much about making holidays successful is meeting kids where they’re at and starting things small, Koole-McCurdy says.

She doesn’t force her kids to do things they don’t like. She gives them breaks. She gets behind the things they love, like decorations. And she finds things in the community, such as a lights and decorations display they can see from inside their car. She sets an appointment to see the Sensory Santa at the mall and adapts holiday traditions to her family’s needs.

“What’s best for our family is that we’re all in a happy place,” she says.

Flexibility and patience are good gifts to have for yourself, Bird says. They help reveal what the holidays are all about.

“Don’t worry about spending money,” Bird says. “Don’t worry about anything. Just remember that you’re fortunate. We’re blessed to have the holiday and to have these kids in our lives. Because, you know, they’re pretty special. They really are.”

To find traditions that may work for your family, consider something tangible. Browse ideas in “Holiday Crafts to Make with Your Child” and “Making Holiday Baking a Success.”

How to Select Appropriate Gifts for Kids with Special Needs

Buying the perfect gift for kids and other loved ones can be challenging, and this can also be true when buying gifts for kids with autism. To help make your gift-giving easier, here are a few helpful tips to keep in mind when purchasing gifts for individuals with autism:

 

Focus on the person’s interests and preferences

Research shows that incorporating preferences into the learning and play environment of individuals with autism, can reduce behaviors and can increase certain skills (1). So we can capitalize on what someone already likes! For example, if a child likes dogs, find games, activities, or toys that are dog-related. If a child likes swimming, activities involving water play may be a hit (e.g., water tables, sprinkler toys, water beads, grow capsules). Alternatively, if a child is sensitive to loud noises, a toy fire truck with a siren may not be appropriate. Ask friends and family of the person for whom you are buying the gift what that person generally likes and/or dislikes.

 

Focus on age-appropriateness

Although keeping a person’s preferences in mind when shopping for gifts is a great start, always consider the age-appropriateness of the gift in mind. For instance, a teen with autism may love playing with shape sorters, but considering that he is a teen and the toy is meant for toddlers, there are more appropriate toys with which he could play. Try finding gifts that have similarities to the original toy, but have age recommendations that correspond to the age of the individual for whom you are buying the gift. For example, rather than buying a new shape sorter for the teen, a more appropriate gift might be Jenga or a piggy bank. In Jenga, stacking wooden blocks in a pattern and pushing wooden blocks out of a block tower is a similar activity to pushing shapes through a shape sorter. Additionally, dropping coins into a piggy bank slot is a similar activity to pushing shapes through a shape sorter. Both of the aforementioned activities could serve as a more appropriate replacement for the shape sorter.

 

Focus on developmental-appropriateness

Many toys come with age recommendations, and while these recommendations are helpful, they might not always lead you to the perfect gift. A rule of thumb when purchasing a gift is to consider both the age and the development of the person for whom you are buying a gift. For example, the game “Apples to Apples” would not be developmentally appropriate for a non-verbal teen, even if it is an age-appropriate game. When looking for the right gift, focus on what the person can do. For instance, if the non-verbal teen mentioned above is great at drawing, then a sketch pad or an adult coloring book could be a more appropriate gift. If you are unsure what the person can do, ask friends and family of the person for whom you are buying the gift what skills that person has mastered.

Note: Be sensitive to how family and friends of a person with autism may feel when being asked questions about the skills of their loved one. If asking questions, always frame your questions from the perspective of accomplishment (e.g., what skills have they mastered) and not deficit (e.g., in what areas are they delayed) to be supportive and respectful of the individual’s growth and development.

 

Be mindful of behavior excesses/triggers

Some individuals with autism engage in behaviors that put them or their loved ones at risk of harm. For example, if a child engages in pica (e.g., eating of nonfood items), gifts containing small objects may pose as a choking hazard. For example, if a child engages in aggression towards others, gifts with violent content may not be appropriate, as additional exposure to violence may contribute to future instances of aggression. Alternatively, individuals with sensory-seeking behaviors may benefit from gifts that redirect their behaviors in more appropriate ways. For example, if a child rocks back and forth, a swing may be a great way to meet their sensory need. Additionally, certain objects can trigger behaviors in some individuals with autism (e.g., loud noises, highly preferred items, phobias, etc.). Ask friends and family of the person for whom you are buying the gift if there are any behavior excesses/triggers to consider before purchasing a gift.

 

Focus on toys that encourage interaction with others

Social deficits are a defining characteristic of autism, which means that when gift-giving, try to purchase gifts that encourage social interaction. While almost any activity can be turned into a social interaction, certain activities may be more conducive to social interactions than others. For example, instead of buying a computer game, consider the game Bop It, which is an electronic game that can be played in a group.

 

Focus on expanding their repertoire

Individuals with autism sometimes have restricted or limited interests (e.g., a person only wants to talk about trucks or only wants to play with dinosaurs). In order to help expand their repertoire, try finding activities that are new, but similar to current interests. For example, if a child’s favorite activity is playing with PlayDoh, kinetic sand or slime may be an appropriate gift to help expand their repertoire because it is similar to their current interest, but slightly different. Ultimately, gifts that will provide them with new experiences may act as potential new reinforcers (e.g., stimuli that increase behaviors), and may significantly enrich their learning environment.

 

Recommendations

Stores: Lakeshore Learning Center, Autism-Products.com, NationalAutismResources.com, Target, Kohl’s, Amazon, WalMart, iTunes (for apps)

Brands: Melissa and Doug, Fat Brain Toys

Apps: Proloquo2Go, Avaz Pro, Life360 (Find my family, friends, phone), Choiceworks

 

– Brittany Barger, M.Ed., BCBA

 

 

Resources

Increasing Task Engagement Using Preference or Choice-Making
Some Behavioral and Methodological Factors Affecting Their Efficacy as Classroom Interventions

Holiday Gift Guide for Children with Autism

By Kelly Namanja

Selecting suitable toys for a child’s holiday or birthday gifts can be challenging, especially when the recipient is a child with autism. This handy list includes a number of popular, age-appropriate toys for children up to five years of age. Parents should keep in mind, however, that every child is unique and will respond differently to certain toys and teaching materials. You can check with your child’s therapist or teacher to determine what’s most appropriate for your child’s needs and interests.

Under 3 years old:
-Shape sorters
-Puzzles (wooden with a peg on each piece)
-Board books (including touch and feel books)
-Stacking/nesting blocks and cups
-Cause-and-effect toys with buttons, lights, sounds, and music
-Dolls and large action figures

Ages 3-5:
-Games (e.g., Candy Land, Chutes and Ladders, Don’t Break the Ice, Hungry Hungry Hippos, Memory, Hi-Ho Cherry-O, Zingo)
-Puzzles (up to 25 piece jigsaw)
-Action figures/dolls and related accessories
-Dress up items and beads
-Pretend play toys (e.g., kitchen, construction, doctor kit, etc.)
-Art supplies (e.g., markers, crayons, stickers, construction paper, glue)
-Play dough and/or Moon sand
-Small building blocks (e.g., LEGOS)
-Cars, trucks, trains, etc.
-Lacing cards
-Sports sets (e.g., plastic bowling ball and pins, plastic baseball, bat, and tee)

All children 5 and under:
-Large building blocks (e.g., Mega Blocks or Duplo)
-Electronic learning toys (e.g. Leap Frog, V-Tech)
-Fisher Price Little People sets
-Plastic animal figurines
-Magna-Doodle
-Musical instruments (e.g. drums, cymbals, maracas, keyboard)

Read Reducing Holiday Stress for Families of Children with Autism

For more tips, check out the Toys R Us Toy Guide for Differently Abled Kids

Reducing Holiday Stress for Families of Children with Autism

The holidays are as joyful as they are stressful, or is it the other way around?

The stress of the holidays, visiting family members, and all that comes with the season can be a lot to deal with under any circumstances.  When caring for a loved one with autism or other developmental challenges, this time of year can feel overwhelming as it creates disruption to the routines and structure of your family’s life.

Here are some helpful strategies to lessen your child’s anxiety and increase your family’s enjoyment of the holiday season:

Shopping:

Holiday shopping, and especially last minute trips to huge department stores, can be over stimulating and stressful for individuals who cannot tolerate too many sounds, bright lights or large groups of people.  If you do take your child shopping with you, allow enough time to gradually adapt to the intense holiday stimuli that stores exhibit at this time of year. Planning multiple short shopping trips is a good idea, and be prepared to leave before you have completed your list if your child can no longer tolerate the environment.

Decorating:

Individuals with autism typically struggle with changes to their environments. Keeping this in mind, decorate your home in gradual stages, rather than changing everything at once. Include your child by having him interact with the decorations and do some of the decorating himself. Some children may be disturbed by decorations with flashing lights and music. Allow your child to experience these in a store or in a quiet place first to determine if he can tolerate them, and how many.

Family Routines:

Maintaining your typical family routines as much as possible during the holiday season will result in fewer behavioral disruptions and less anxiety for the family as a whole. This is often tough to do with travel, visitors in your home, and long family gatherings. If your child can predict and understand what is going to happen, he will manage the celebration far better. Writing a story or using some visual supports (photos, drawings) to show how the day will unfold will allow him to practice some social behaviors. A visual schedule will also give you a tool to use for reference during the day, reminding him what is going to happen next (when he will get to open toys etc). This type of system creates independence and structure within a typically more unstructured setting.

Gifts:

Gifts are tempting to all of us.  Create opportunities to teach (and remind) that gifts will be opened during specific times during the family ritual of getting together. For families celebrating a holiday such a Hanukkah, where children may receive gifts on multiple nights, try using a visual schedule to show your child which nights he will get to open a gift and which nights he will not. We suggest waiting until just before the holiday to put gifts out to reduce the temptation for opening them. You can also practice a family ritual of taking turns opening gifts so your child learns to wait his turn and learns to predict when it is his turn to open a gift.

Your child may not be inclined to share their toy or may immediately want to play with another child’s toy. This can cause disruption and chaos so plan ahead, perhaps selecting one toy to be shared while the others are set aside or bring another new toy with you to share with the other children.

Make it Your Own:

It is important to identify what the meaning of the holiday is for you and your family and how you want to honor that- your special ritual, celebration, event. Once you have identified what that looks like, you can begin practicing ahead of time with your child and your family and extended family members what you and your child will need to make that event successful. We hope that some of the tips we have provided will help you and your family experience a peaceful, joyful and meaningful holiday season.

Watch our Holiday Parent Video for more helpful tips.