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The Maryland Autism Waiver Program: What to Expect

If you’re a Maryland parent of a child with autism, you may be familiar with the state’s Autism Waiver program. The program provides therapy and support to people with autism at home and in the community. It promotes independent living skills and overall well-being.

For years, the program has had a long waitlist. The “End the Wait Act,” a new law, will change that by cutting the waitlist for autism services in half.

That’s where Trellis comes in. We’re a full-service provider that covers everything to do with autism services. We started as an autism waiver provider in 2001 and have grown to be the largest provider in Maryland today.

We provide services for more than 170 families across 10 counties. And our roster of about 250 employees is growing to meet the demand.

Understanding the Waiting List for the Maryland Autism Waiver Program

Maryland created the Autism Waiver waiting list to prioritize families who needed services the most. The registry has grown to almost 7,000 kids.

You may be among the thousands of families eagerly waiting for your turn to receive services. Being on the waiting list does not imply a lack of eligibility or importance. But it does signify the high demand for these services and the need for careful allocation.

The “End the Wait” legislation should speed up the approval process. You will receive a letter from the state saying when you can leave the waitlist and apply for services. Once you have met the eligibility criteria, your child will be able to begin accessing services.

Hope on the Horizon: Senate Bill 636

While the wait can be frustrating, it’s crucial to remain patient and persistent. The “End the Wait Act” (Senate Bill 636) offers hope. It signals a commitment from the state to reduce the waiting list for services by 50 percent.

As a parent, it’s natural to feel frustrated and anxious while waiting for your child to receive the autism waiver services. Staying informed can help you navigate this waiting period with resilience and hope, though. Remember, you are doing your best to care for your child. The Autism Waiver program is here to assist you, and Trellis can help you through it. Together, we can help make your transition to our services easier.

How Long Will My Child Be in ABA?

There is no simple answer to this question. Many factors impact the decision regarding the duration of an ABA (Applied Behavior Analysis) program for a child/adolescent with autism.

Whether services are provided in a home, clinic, or school-based setting there should be a detailed plan in place to guide the family through the intervention process and resources available for when services end. The following information is provided to help parents develop appropriate expectations regarding the duration of an ABA program for a child with autism.

Although there is no cure for autism, there is an abundance of research indicating that intervention programs based on the principles of ABA can have an incredible impact on a child. The ultimate goal of any intervention program is to increase adaptive behaviors and to decrease challenging behaviors to the point the individual with autism is able to function independently in daily life. The length of time a child participates in an ABA program will depend on the type of program implemented, the child’s progress toward identified goals, and the family’s ability to use the principles of ABA in everyday life.

The Program

Intervention programs may be implemented in a variety of settings. Home-based services are often delivered as part of a comprehensive or focused program. Your BCBA (Board Certified Behavior Analyst) may make use of The Behavior Analyst Certification Board (BACB®) Practice Guidelines for Healthcare Funders and Managers to inform decisions about intervention models appropriate for your family. The guidelines state that comprehensive programs address skill deficits and behavioral excesses across many domains and focused programs target a “limited number of key functional skills”. Focused programs often occur over a shorter period of time relative to comprehensive programs.

Progress

Children vary in the time it takes to acquire new skills. Further, complex skill acquisition targets such as maintaining a conversation will often require more time to demonstrate mastery than a target such as color identification. Clinicians should closely monitor a child’s progress toward a goal to ensure learning is occurring. Clinicians should closely monitor a child’s progress toward a goal to ensure learning is occurring If the child demonstrates difficulty acquiring a targeted skill, the clinician must make adjustments to the program in order to meet the needs of the child.

There are a number of ways to monitor a child’s progress. Line graphs provide important and detailed information about a child’s learning. Criterion-referenced assessments such as The Verbal Behavior Milestones Assessment and Placement Program (VB-MAPP) and norm-referenced measures such as the Vineland Adaptive Behavior Scales, Third Edition also provide valuable information. Once the child meets the mastery criteria of all goals identified in the treatment plan, the clinician may recommend a decrease in the number of one-to-one service hours.

Parents and Caregivers

An effective ABA program includes parents and caregivers implementing applied behavior analytic strategies during everyday life. The generalization of skills occurs when the child is able to demonstrate newly developed skills in a variety of environments with different people. Generalization is critical to an effective ABA program. If parents are able to teach their child new skills and generalize those skills to new settings, they are equipped with tools to address future challenges once the ABA program ends.

Putting It All Together

The long-term outcome for every family with a child with autism is different. Some individuals with autism remain at home with family members well into their adult years. Some individuals with autism live independently and pursue a career. Some individuals with autism live with some assistance provided by vocational trainers, social workers, and/or financial planners.

Many families begin their journey with autism by having their child participate in a one-to-one ABA program. One-to-one services are ended when program goals are met and parents are equipped with strategies to support their child’s learning and generalization of skills. However, parents often make use of consultation with a BCBA to assist with problem-solving specific behavioral issues. In reality, ABA is not something that has an end date. The skills that parents develop from the hard work of implementing an ABA program evolve and are used for a lifetime. Just as parents make use of strategies to promote good physical health (e.g., healthy eating and exercise), they also make use of effective teaching and problem solving learned from their ABA program.